And We're.....

.....back on the trial. I know, I know.  But let's temper our annoyance with process and procedures and left hand/right hand, NHS bureaucracy etc etc with the sheer unadulterated joy of (as at this precise instant in time) being back on the damn thing and therefore having some hope of.... what? Not really sure but I feel hopeful. And that's a good feeling and I'd like to stay with that for a little bit.

In other good news the chest infection has cleared up and so we're also back on my rapid steroid detox programme although it's even more rapid than it was before. So I need to be a bit careful and keep an eye on my body's reaction to the withdrawal. Likelihood is I'm going to feel tired and lethargic (I'll add in irritable, they didn't say irritable but I know what I'm like when I'm tired and lethargic) but hopefully no worse than that. But, discretion being the better part of valour, I've decided not to go to Swansea for the weekend as I'd originally planned just in case it does go beyond tired and lethargic. Better to be up here and close to The Christie in case we do need any interventions of any sort.  Dad understands and is just really happy that I'm back on the trial (insert usual disclaimers about not knowing yet whether I'll get new drug). On current plans and assuming the detox works we could be looking at randomisation on Monday. But then we also need to re-do all the tests that are now out of date for the trial - CT scan (will be a last minute call on a cancellation), blood tests (hundreds) and lung function stuff. Oh you can just imagine the arrangements to be made and forms to be filled in.  

I've also lost more weight and so carer in chief has now started nagging about drinking more Ensure Plus. That's fine. I can do that. 

And I'm going to stop there for now. May report later (although there's football to watch and possibly cry over). J x